Public and Patient Involvement
Against Breast Cancer involve the public and patients as Research Advocates in our grant funding review process and to inform our Research Strategy, which provides researchers with insights into what it is like for those living beyond a breast cancer diagnosis or with metastatic breast cancer. These insights can help to make health research more relevant to the needs of patients, carers and service users.
Researchers are requested to provide a layman’s summary of proposed research as part of their grant proposal application to assist in communicating the aims and methods of the proposed research project. As members of our Scientific Advisory Board, Research Advocates provide feedback on grant proposals submitted to the charity to ensure that the research we fund is relevant and acceptable to breast cancer patients. This feedback is taken into consideration by the Trustees who make funding decisions alongside the recommendations of expert scientists who assess funding applications for scientific merit, uniqueness, and viability within the proposed budget.
Research Advocates may also contribute to public relations material produced by the charity in print and online to ensure that communications regarding the research projects are easy to understand and meaningful to our supporters.
In line with recommended practice by the National Institute of Health Research’s (NIHR) Research Design Service, Research Advocates can be;
- People who use, or have used, health or social care services
- Informal (unpaid) carers and family members
- Members of the general public
- Organisations who represent patients and users
- Patient support groups
- Charities that represent specific health conditions
- Individuals with an interest in the topic being researched.
Research Advocates are provided with materials, glossary of terms and training as required.